A National Resource for Parkinson’s Resilience
About Parkinson’s Resilience Institute
The Parkinson’s Resilience Institute is a nonprofit organization* that helps people with Parkinson’s disease and their care partners build resilience, navigate their condition with confidence, and stay engaged in life.
Our core offerings include Parkinson’s Pilot, a short video course for individuals and families, and a facilitator certification program that trains leaders to guide Parkinson’s resilience support groups in their communities.
Future goals include:
Establishment of a national reserve of free or low-cost home care professionals.
Building a team of “angels” to visit people in their homes to provide encouragement and specific information to people without their own support communities.
A program to promote the establishment of unified “care clusters” of healthcare providers all trained on the inter-relatedness of the motor and non-motor symptoms across the whole Parkinson’s spectrum.
Development of a workable plan that will certify assisted living facilities as Parkinson’s care centers.
Our commitment is to fill the numerous gaps in Parkinson’s support and bring understanding and comfort to everyone who suffers with the disease.
*501(c)3 nonprofit status is pending.
Why We Do What We Do
A Parkinson’s diagnosis brings immediate and constant uncertainty that affects every aspect of life. Finding meaningful support is hard. In the midst of difficulty and loss, personal resilience is critical.
Our mission is to create a space where the realities of Parkinson’s can be discussed openly and honestly, where caregivers are supported alongside those living with the disease, and where people are shown that a meaningful, engaged life is still possible.
A Word from Our Founder
My Parkinson’s journey began in 2021 when I started experiencing violent RBD episodes, fatigue, brain fog, and apathy. It took four years to get a confirmed diagnosis of Parkinson’s disease.
During that time, I watched my health, creativity, and career slowly unravel as I searched for answers without any real guidance.
After I was diagnosed, I began to see that information about the disease, access to specialized healthcare and support, and most of all, communities of fellow travelers, were fragmented and hard to find. Along the way, I met others facing the same uncertainty, and was inspired to help people navigate it with greater clarity and support.
I made a commitment in the time I have remaining as a healthy, connected professional to focus my efforts toward solving as many of these deficits in care and support as I possibly could.
My challenge to you is to join me in bringing knowledge, connection and hope to people across America who have been isolated and confused by the lack of consistent support for their Parkinson’s journey.